Podcasts:
Rare Disease Connection Podcast
Off the F*cking Rails - A Crash Course in Crisis Parenting
The Rare Life: 81 - Health Anxiety
The Rare Life: 85 - Should A Child’s Disability be Part of Their Parent’s Identity? (With author Emily Ladau)
The Rare Life 99 - Family Planning When You Have a Medically Complex Child
The Rare Life 108 - The Holidays + Why They Kinda Suck for Medical/Disability Parents
The Rare Life 109 - Isolating at Home During Holiday Events to Avoid Illness
The Rare Life 110 - When Your Child is Inpatient at the Hospital During Holidays
The Birth Trauma Mama: Disability Parenting After Birth Trauma
Miracle Moon: Navigating Medical Parenthood
The Rare Life 130 - Fearful of Child Loss and Anticipatory Loss
The Rare Life 131 - Chronic Stress + Our Bodies
The Rare Life 132 - The Inaccessibility Of Self Care and How to Define it
The Rare Life 135 - Careers and Family Roles and the Resentment We Feel
The Rare Life 142_ What if My Child Outlives Me
The Rare Life 153: Hurtful Things our Loved Ones Say, and How to Respond
The Rare Life 156: Should I Get a Divorce?
Raising Disabled: Parent Guilt
Forthcoming: Conquering Your Clownfish
The Rare Life: Managing with Mental Load, with Madeline Cheney and Will Atkins
Speaking:
Upcoming:
BARE Symposium Day 2 Keynote Speaker, May 11, 2024, Palo Alto
2024 CVI Conference: June 23-25, Boston
Angelman Syndrome Family Conference - July 23-26
2024 RARE Advocacy Summit - Sept 26-27
Previous:
Collaboration for Change Conference
CVI Now - Permission to talk about the hard stuff
For press requests and inquiries about speaking engagements, click below or email amanda@amandaatkinschicago.com