
In the press
Interested in booking Amanda to speak or interviewing her on your podcast?

Podcasts/Webinars:
Off the F*cking Rails - A Crash Course in Crisis Parenting
The Rare Life: 81 - Health Anxiety
The Rare Life: 85 - Should A Child’s Disability be Part of Their Parent’s Identity? (With author Emily Ladau)
The Rare Life 99 - Family Planning When You Have a Medically Complex Child
The Rare Life 108 - The Holidays + Why They Kinda Suck for Medical/Disability Parents
The Rare Life 109 - Isolating at Home During Holiday Events to Avoid Illness
The Rare Life 110 - When Your Child is Inpatient at the Hospital During Holidays
The Birth Trauma Mama: Disability Parenting After Birth Trauma
Miracle Moon: Navigating Medical Parenthood
The Rare Life 130 - Fearful of Child Loss and Anticipatory Loss
The Rare Life 131 - Chronic Stress + Our Bodies
The Rare Life 132 - The Inaccessibility Of Self Care and How to Define it
The Rare Life 135 - Careers and Family Roles and the Resentment We Feel
The Rare Life 142_ What if My Child Outlives Me
The Rare Life 153: Hurtful Things our Loved Ones Say, and How to Respond
The Rare Life 156: Should I Get a Divorce?
Raising Disabled: Parent Guilt
Conquering Your Clownfish: Preparation, Love, and Self-Care
The Rare Life 159: Managing with Mental Load
We are Brave Together: When You Wish Your Kid Had a Different Diagnosis
Relationships 101 - Marriage & Parenting a Medically Complex Child with DEE-P connections
The Rare Life: Grief: What is is, Why it’s there, and How to Process it
The Rare Life: Book Review! How to Handle More Than You Can Handle
Reimagining Love with Alexandra Solomon: The Journey of Raising a Disabled Child
Speaking:
Upcoming:
2025 International GM1 Community Conference, Irvine, CA
August 13 - The Book Cellar, Chicago, IL
August 26 - Schuler’s Books, Grand Rapids, MI
September 12 - P.G. Chambers School, Cedar Knoll, NJ
September 13 - Apricity Hope, Norfolk, VA
September 27 - Barnes & Noble, Oswego, IL
2026
July 19-21 - CVI Conference, Boston
July 31 - KARES Family & Science Conference, Ann Arbor, MI
Past:
2024 RARE Advocacy Summit, Kansas City, KS
Collaboration for Change Conference
CVI Now - Permission to talk about the hard stuff
BARE Symposium Keynote Speaker, Palo Alto, CA
Angelman Syndrome Family Conference
2022 CVI Conference, Boston, MA
2025 Cholestatic Liver Disease Summit, Denver CO
2025 STXBP1 Summit+, Denver CO