In the press 

Interested in booking Amanda to speak or interviewing her on your podcast?

Podcasts/Webinars:

Off the F*cking Rails - A Crash Course in Crisis Parenting

The Rare Life: 81 - Health Anxiety

The Rare Life: 85 - Should A Child’s Disability be Part of Their Parent’s Identity? (With author Emily Ladau)

The Rare Life 99 - Family Planning When You Have a Medically Complex Child

The Rare Life 108 - The Holidays + Why They Kinda Suck for Medical/Disability Parents

The Rare Life 109 - Isolating at Home During Holiday Events to Avoid Illness

The Rare Life 110 - When Your Child is Inpatient at the Hospital During Holidays

The Birth Trauma Mama: Disability Parenting After Birth Trauma

Miracle Moon: Navigating Medical Parenthood

The Rare Life 130 - Fearful of Child Loss and Anticipatory Loss

The Rare Life 131 - Chronic Stress + Our Bodies

The Rare Life 132 - The Inaccessibility Of Self Care and How to Define it

The Rare Life 135 - Careers and Family Roles and the Resentment We Feel

The Rare Life 142_ What if My Child Outlives Me

The Rare Life 153: Hurtful Things our Loved Ones Say, and How to Respond

The Rare Life 156: Should I Get a Divorce?

Raising Disabled: Parent Guilt

Conquering Your Clownfish: Preparation, Love, and Self-Care

The Rare Life 159: Managing with Mental Load

We are Brave Together: When You Wish Your Kid Had a Different Diagnosis

Relationships 101 - Marriage & Parenting a Medically Complex Child with DEE-P connections

The Rare Life: Grief: What is is, Why it’s there, and How to Process it

The Rare Life: Book Review! How to Handle More Than You Can Handle

Reimagining Love with Alexandra Solomon: The Journey of Raising a Disabled Child

Speaking:

Upcoming:

2025 International GM1 Community Conference, Irvine, CA

August 13 - The Book Cellar, Chicago, IL

August 26 - Schuler’s Books, Grand Rapids, MI

September 12 - P.G. Chambers School, Cedar Knoll, NJ

September 13 - Apricity Hope, Norfolk, VA

September 27 - Barnes & Noble, Oswego, IL

2026

July 19-21 - CVI Conference, Boston

July 31 - KARES Family & Science Conference, Ann Arbor, MI

Past:

2024 RARE Advocacy Summit, Kansas City, KS

Collaboration for Change Conference

FPWR Annual Family Conference 

CVI Now - Permission to talk about the hard stuff

BARE Symposium Keynote Speaker, Palo Alto, CA

2024 CVI Conference

Angelman Syndrome Family Conference

2022 CVI Conference, Boston, MA

2025 Cholestatic Liver Disease Summit, Denver CO

2025 STXBP1 Summit+, Denver CO

Corporate presentations:

Balyasny Asset Management

UBS

AlertMedia

Sirius XM Radio