Book Amanda for Speaking & Podcasts
Keynotes, conferences, podcasts, webinars, group meetings, and trainings focused on caregiving, disability, relationships, grief and loss, mental health, and more.
Upcoming Events - 2026
October 17
Biliary Atresia DayKansas CityPast Events
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Elevate Your Impact Virtual Conference - Speaker
The Arc Family Leaders Collaborative Virtual Conference - Speaker
Autism Society of San Diego - Speaker
BARE Virtual Event - Marriage, Partnership, & Coparenting
Dear Mom Project - Speaker & Breakout Group, Laguna Beach, CA
The More Than Project - Keynote & Breakout Group, Owensburg, KY
Lily and Blaire - Speaker, Boston, MA
Alternating Hemiplegia of Childhood Boston, MA
KARES Family & Science Convention - Opening Keynote, Ann Arbor, MI
ASXL Research Symposium and Family Conference - Closing Keynote, Ann Arbor, MI
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Cholestatic Liver Disease Summit, Speaker, Denver CO
STXBP1 Summit+, speaker, Denver CO
International GM1 Community Conference, Keynote, Irvine CA
Autism Society of San Francisco Adult Autism Conference - Opening Keynote
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RARE Advocacy Summit, Speaker, Kansas City, KS
FPWR Annual Family Conference, Speaker, Chicago, IL
CVI Now (virtual event)- Permission to talk about the hard stuff
BARE Symposium Keynote Speaker, Palo Alto, CA
CVI Conference, Bostin
Angelman Syndrome Family Conference, Speaker, Sandusky, Ohio
Podcasts:
Off the F*cking Rails - A Crash Course in Crisis Parenting
The Rare Life: 81 - Health Anxiety
The Rare Life: 85 - Should A Child’s Disability be Part of Their Parent’s Identity? (With author Emily Ladau)
The Rare Life 99 - Family Planning When You Have a Medically Complex Child
The Rare Life 108 - The Holidays + Why They Kinda Suck for Medical/Disability Parents
The Rare Life 109 - Isolating at Home During Holiday Events to Avoid Illness
The Rare Life 110 - When Your Child is Inpatient at the Hospital During Holidays
The Birth Trauma Mama: Disability Parenting After Birth Trauma
Miracle Moon: Navigating Medical Parenthood
The Rare Life 130 - Fearful of Child Loss and Anticipatory Loss
The Rare Life 131 - Chronic Stress + Our Bodies
The Rare Life 132 - The Inaccessibility Of Self Care and How to Define it
The Rare Life 135 - Careers and Family Roles and the Resentment We Feel
The Rare Life 142_ What if My Child Outlives Me
The Rare Life 153: Hurtful Things our Loved Ones Say, and How to Respond
The Rare Life 156: Should I Get a Divorce?
Raising Disabled: Parent Guilt
Conquering Your Clownfish: Preparation, Love, and Self-Care
The Rare Life 159: Managing with Mental Load
We are Brave Together: When You Wish Your Kid Had a Different Diagnosis
Relationships 101 - Marriage & Parenting a Medically Complex Child with DEE-P connections
The Rare Life: Grief: What is is, Why it’s there, and How to Process it
The Rare Life: Book Review! How to Handle More Than You Can Handle
Reimagining Love with Alexandra Solomon: The Journey of Raising a Disabled Child
Conquering Your Clownfish Episode 70 - Finding Joy Outside of Parenting
Raising Disabled: Book Review!